Amyotrophic Lateral Sclerosis Association
The ALS Association (Amyotrophic Lateral Sclerosis Assn, EIN 13-3271855) is a national nonprofit headquartered in Arlington, VA whose mission is to make ALS livable until there is a cure. The organization funds ALS research, provides patient services and local support, and leads advocacy and fundraising programs.
Source: Website · Mar 2026
Ideal Applicant
Organizations directly involved in ALS research, clinical trials, recognized treatment centers or local ALS clinic services, and industry partners on drug development or trial capacity projects.
Good Fit
- • Proposes ALS-focused clinical research or trial capacity projects.
- • Is a university medical center, research institute, or recognized treatment center with demonstrated clinical capacity.
- • Seeks funding for drug development contracts, clinical trial awards, fellowships, or center-of-excellence research.
- • Provides patient services or clinic support aligned with the ALS Association’s clinic/quality-of-care programs.
- • Can show prior partnership experience or measurable clinical/research impact in ALS or related neuromuscular disease work.
Geography
Giving is national in scope: grants went to recipients in 38 states in the latest year, though one state accounted for about 26% of dollars.
Recipient Variety
The latest year shows a large and diverse recipient set (125 distinct recipients) including universities, hospitals, foundations and biotech firms; dollar concentration is moderate (top five ~26%) but does not dominate the portfolio.
New Applicants
Behavioral evidence shows regular new entrants (23 new recipients in the latest year, 34 the prior year) and a mix of returning grantees, and the profile includes a clear research grants contact—direct evidence supports plausibility for unfamiliar applicants to enter the portfolio even though no formal application guidelines were captured.
Source: Zeffy Agent · Mar 2026
